Crucible of the incurable : facing ALS /
"An anthropological inquiry into how people with the neurodegenerative illness amyotrophic lateral sclerosis live with the illness, and how they are accompanied by medical professionals and loved ones in giving form to a life with this illness"--
| Autor principal: | |
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| Formato: | Licensed eBooks |
| Idioma: | inglês |
| Publicado em: |
Ithaca, New York :
Cornell University Press,
2024.
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| coleção: | Expertise (Ithaca, N.Y.)
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| Acesso em linha: | https://www.jstor.org/stable/10.7591/jj.11818249 |
Sumário:
- On linking knowledge and care for ALS
- The emergence of a diagnostic certitude
- Nosological indeterminations
- Multidisciplinary ALS care
- ALS clinic
- Palliative care clinic
- Epistles to ones
- Plea for a blessing
- Advocate
- The incurable and the possible.