Addressing sickle cell disease : a strategic plan and blueprint for action /

Detaylı Bibliyografya
Diğer Yazarlar: Martinez, Rose Marie, 1956- (Editör), Osei-Anto, Henrietta Awo (Editör), McCormick, Marie C. (Editör)
Materyal Türü: Licensed eBooks
Dil:İngilizce
Baskı/Yayın Bilgisi: Washington, DC : National Academies Press, [2020]
Seri Bilgileri:Consensus study report.
Online Erişim:https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=2742044
İçindekiler:
  • Introduction
  • Societal and structural contributors to disease impact
  • Screening, registries, and surveillance
  • Complications of sickle cell disease and current management approaches
  • Health care organization and use
  • Delivering high-quality sickle cell disease care with a prepared workforce
  • Developing and delivering the next generation of therapies
  • Community engagement and patient advocacy
  • Strategic plan and blueprint for sickle cell disease action
  • Appendixes.