Addressing sickle cell disease : a strategic plan and blueprint for action /

Bibliografiska uppgifter
Övriga upphovsmän: Martinez, Rose Marie, 1956- (Utgivare, redaktör, sammanställare), Osei-Anto, Henrietta Awo (Utgivare, redaktör, sammanställare), McCormick, Marie C. (Utgivare, redaktör, sammanställare)
Materialtyp: Licensed eBooks
Språk:engelska
Publicerad: Washington, DC : National Academies Press, [2020]
Serie:Consensus study report.
Länkar:https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=2742044
Innehållsförteckning:
  • Introduction
  • Societal and structural contributors to disease impact
  • Screening, registries, and surveillance
  • Complications of sickle cell disease and current management approaches
  • Health care organization and use
  • Delivering high-quality sickle cell disease care with a prepared workforce
  • Developing and delivering the next generation of therapies
  • Community engagement and patient advocacy
  • Strategic plan and blueprint for sickle cell disease action
  • Appendixes.