Addressing sickle cell disease : a strategic plan and blueprint for action /
| Outros Autores: | , , |
|---|---|
| Formato: | Licensed eBooks |
| Idioma: | inglês |
| Publicado em: |
Washington, DC :
National Academies Press,
[2020]
|
| coleção: | Consensus study report.
|
| Acesso em linha: | https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=2742044 |
Sumário:
- Introduction
- Societal and structural contributors to disease impact
- Screening, registries, and surveillance
- Complications of sickle cell disease and current management approaches
- Health care organization and use
- Delivering high-quality sickle cell disease care with a prepared workforce
- Developing and delivering the next generation of therapies
- Community engagement and patient advocacy
- Strategic plan and blueprint for sickle cell disease action
- Appendixes.