Addressing sickle cell disease : a strategic plan and blueprint for action /

Opis bibliograficzny
Kolejni autorzy: Martinez, Rose Marie, 1956- (Redaktor), Osei-Anto, Henrietta Awo (Redaktor), McCormick, Marie C. (Redaktor)
Format: Licensed eBooks
Język:angielski
Wydane: Washington, DC : National Academies Press, [2020]
Seria:Consensus study report.
Dostęp online:https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=2742044
Spis treści:
  • Introduction
  • Societal and structural contributors to disease impact
  • Screening, registries, and surveillance
  • Complications of sickle cell disease and current management approaches
  • Health care organization and use
  • Delivering high-quality sickle cell disease care with a prepared workforce
  • Developing and delivering the next generation of therapies
  • Community engagement and patient advocacy
  • Strategic plan and blueprint for sickle cell disease action
  • Appendixes.