Addressing sickle cell disease : a strategic plan and blueprint for action /

Bibliografiset tiedot
Muut tekijät: Martinez, Rose Marie, 1956- (Toimittaja), Osei-Anto, Henrietta Awo (Toimittaja), McCormick, Marie C. (Toimittaja)
Aineistotyyppi: Licensed eBooks
Kieli:englanti
Julkaistu: Washington, DC : National Academies Press, [2020]
Sarja:Consensus study report.
Linkit:https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=2742044
Sisällysluettelo:
  • Introduction
  • Societal and structural contributors to disease impact
  • Screening, registries, and surveillance
  • Complications of sickle cell disease and current management approaches
  • Health care organization and use
  • Delivering high-quality sickle cell disease care with a prepared workforce
  • Developing and delivering the next generation of therapies
  • Community engagement and patient advocacy
  • Strategic plan and blueprint for sickle cell disease action
  • Appendixes.