Addressing sickle cell disease : a strategic plan and blueprint for action /

Detalles Bibliográficos
Otros Autores: Martinez, Rose Marie, 1956- (Editor), Osei-Anto, Henrietta Awo (Editor), McCormick, Marie C. (Editor)
Formato: Licensed eBooks
Lenguaje:inglés
Publicado: Washington, DC : National Academies Press, [2020]
Colección:Consensus study report.
Acceso en línea:https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=2742044
Tabla de Contenidos:
  • Introduction
  • Societal and structural contributors to disease impact
  • Screening, registries, and surveillance
  • Complications of sickle cell disease and current management approaches
  • Health care organization and use
  • Delivering high-quality sickle cell disease care with a prepared workforce
  • Developing and delivering the next generation of therapies
  • Community engagement and patient advocacy
  • Strategic plan and blueprint for sickle cell disease action
  • Appendixes.