"Save my kid" : how families of critically ill children cope, hope, and negotiate an unequal healthcare system
A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart o...
| Autor principal: | |
|---|---|
| Formato: | Licensed eBooks |
| Idioma: | inglês |
| Publicado em: |
New York :
New York University Press,
2020.
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| Acesso em linha: | https://search.ebscohost.com/login.aspx?direct=true&scope=site&db=nlebk&AN=2090061 |
Sumário:
- Cover
- Title
- Copyright
- Dedication
- Contents
- Preface
- Part I: Families in Crisis. 1. Hope is a thing with feathers
- 2. Studying families of critically ill children
- Part II: Unequal illnesses.3. Care-captaining: climbing the rungs of the US healthcare system
- 4. Care-entrusting: staying on the medical sidelines
- 5. Blending and switching care strategies: finding emotional equilibrium
- Part III: Tangled Up in Hope.6. When everything is not enough
- 7. The fragility and tenacity of hope
- 8. Emotionally perilous paths: illness management, emotion management, and the production of healthcare inequalities
- Acknowledgments
- Appendix A: Doing fieldwork in emotionally fraught settings: a brief reflection
- Appendix B: Family and physician demographics
- Notes
- References
- Index
- About the Author.