TY  - GEN
T1  - "Save my kid" : how families of critically ill children cope, hope, and negotiate an unequal healthcare system
A1  - Gengler, Amanda M.
LA  - English
PP  - New York
PB  - New York University Press
YR  - 2020
UL  - https://ebooks.jgu.edu.in/Record/ebsco_acadsubs_on1129193631
AB  - A frank analysis of the medical and emotional inequalities that pervade the healthcare process for critically ill children Families who have a child with a life-threatening illness face a daunting road ahead of them, one that not only upends their everyday lives, but also strikes at the very heart of parenthood. In "Save My Kid," Amanda M. Gengler traces the emotional difficulties these families navigate as they confront a fundamentally unequal healthcare system in the United States. Gengler reveals the unrecognized, everyday inequalities tangled up in the process of seeking medical care, showing how different families manage their children's critical illnesses. She also uncovers the role that emotional goals--deeply rooted in the culture of illness and medicine--play in medical decision-making, healthcare interactions, and the end of children's lives. A deeply compassionate read, "Save My Kid" is an inside look at inequality in healthcare among those with the most at stake.
OP  - 241
CN  - RJ47.7 .G46 2020
SN  - 1479834327
SN  - 9781479834327
SN  - 9781479863938
SN  - 1479863939
SN  - 9781479864621
SN  - 1479864625
KW  - Critically ill children : Medical care : United States.
KW  - Parents of terminally ill children : Psychology.
KW  - Catastrophic illness : Social aspects : United States.
KW  - Child health services : United States.
KW  - Health services accessibility : United States.
KW  - Health services accessibility.
KW  - Children.
KW  - Health Services Accessibility
KW  - Critical Illness
KW  - Child
KW  - United States
KW  - Enfants malades dans un état critique : Soins médicaux : États-Unis.
KW  - Parents d'enfants malades en phase terminale : Psychologie.
KW  - Maladies graves : Aspect social : États-Unis.
KW  - Services de santé : Accessibilité : États-Unis.
KW  - Services de santé : Accessibilité.
KW  - Enfants.
KW  - Enfance.
KW  - children (people by age group)
KW  - childhood.
KW  - SOCIAL SCIENCE / Children's Studies.
KW  - Children
KW  - Catastrophic illness : Social aspects
KW  - Child health services
KW  - Health services accessibility
KW  - Parents of terminally ill children : Psychology
KW  - Ungerechtigkeit
KW  - Krankheit
KW  - Kind
KW  - Gesundheitswesen
KW  - Eltern
KW  - USA
KW  - Enfants malades en phase terminale : Soins médicaux : États-Unis.
KW  - Enfants malades en phase terminale : Famille : États-Unis.
KW  - Enfants : Services de santé : États-Unis.
ER  -